I can in no way shape or form compare my medical conditions to Montel Williams or Michael J. Fox. They were both on Oprah recently and I find myself connected to these actors in a way probably only they would understand (they or anyone else struck by something 'incurable'). They were so humble and humbling and I thought it so brave for two men to come on Oprah and bare their souls so to speak about their lives and what they live with everyday. I am not stupid. There are people everywhere living with medical conditions. The range of treatableness, pain, and all that are different because no person is the same. It is how we choose to handle it that can help determine how we will survive. Montel sat up there and cried. Hard to watch, and I completely got it. Michael said "vanity is the first thing to go" oh is he ever right. They both had so much to say to me, that I felt like they were looking at me and saying "you're doing ok, we get it, and you get it, and it's hard, but we understand. Doctors won't always get it, but you are handling yourself very well-good for you."
I think given what I have been given, I am handling myself well. I want all my reader (lol) to be able to at least see the show with MJF on it. He was so real, so true to himself, by being real about what's happening to him. I know this epilepsy won't kill me as one doctor put it. But the day to day is scary and I do get my brave moments. And I do get my moments of extreme fear and I just want to be left alone. I have been so held up by so many, that I know it's one of the reasons I haven't fallen into despair about this very strange thing that has taken over my body. Many a day I could have laid in bed and said 'why oh why' and I know I have asked once or twice. But I have kept on living. I have a beautiful howit for crying out loud. I have my job and friends. And that honey of mine-you know in SICKNESS and in health. Boy is he doing good with that! I try to ask "why not me?" instead. It really could be so much worse. Would I rather have a worse condition or an actual disease? I still have a job-the list could go on.
I guess what I am trying to say in a very ladylike way is count your blessings. In the end, you might be able to say...WHHHEEEEE
Saturday, April 4, 2009
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